Association Help for children with Xeroderma Pigmentosum in Tunisia work for the cause of the "moon children" (children with a rare disease that condemns them to never be exposed to daylight, and some artificial lights) for a better understanding of the disease, preventive methods for the establishment of structures (education, leisure ...) adapted to the condition of children, provide all kind of ways to prevent those who are not able to get them (suits, goggles sun creams ...).
The xeroderma pigmentosum (XP) is a debilitating hereditary disease characterized by extreme photosensitivity skin-eye sometimes associated with serious neurological disorders. From childhood, patients with XP develop multiple benign and malignant skin tumors responsible for the facial disfigurement and loss of sight.
For those wishing more Information:
http://www.xp-tunisie.org.
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